Category: Medication

How routine and structure help in maintaining a positive life when you have bipolar disorder

A healthy routine and structure has helped me be more resilient, reduce fluctuations in mood and has contributed to a sense of happiness and fulfillment in my life.

During acute depressive episodes, many people end up spending most of their time in bed. There are logical reasons for this. The most obvious being that during depressive episodes one of the symptoms is an incredibly high level of fatigue. Plus, the warmth of being under the covers helps ease the physical pain that one also experiences during these episodes. Once your symptoms become more manageable, finding a routine and a structured life can help create a more consistent feeling of wellness when you have bipolar disorder.

The first thing I do every day is take my medication. I make sure to put them in the same spot every night before I go to bed. During my last severe depressive episode my concentration was poor. Often, I wouldn’t be sure if I took my medication or not. The idea of filling up my own pill organizer when I was unwell seemed impossible. I had my pharmacy put my meds in blister packs until I was able to fill pill organizers on my own. I have an alarm on my phone that tells me when to take my meds in the evening. I have had occasions when a change in residence or life events disrupted my routine and I got into a pattern of saying to myself it’s just one dose multiple times. This has led to manic and depressive episodes. It’s a priority for me that I am consistent with taking my medication.

After my last episode, volunteer work helped provide the structure I needed to get back into a life where I could do more in a day. Even though, it was just for three hours twice a week it gave me a reason to shower, interact with people and it made me feel like I had a weekend. Even on the days I didn’t volunteer, I started to get up and structure my days as if I would be volunteering. It also helped me get my sleep routine on track because I was staying up late and waking up at random times because there was no reason to get up early.

Finding a peer support group that I could attend once a week was the next addition to my schedule that was helpful. It kept me accountable for lifestyle choices that promoted wellness and it provided connection and a commitment that was within my capacity to keep. Organizations like the DBSA have online peer support groups for people who have bipolar disorder.

Walking to my volunteer job was a nice way to add a little bit of exercise to my day. I don’t walk as much as I used to but I play tennis or badminton once a week. I usually walk when I notice a depressive episode starting which prevents them from getting worse and lasting as long. I imagine if I made walking a more consistent part of my routine I would probably have less episodes but nobody is perfect.

When you have bipolar disorder it is crucial that you get enough sleep. For most of the people that I have met who have bipolar disorder a lack of sleep can be a red flag that their mood may be going high. Finding a sleep routine that suits your individual needs is important. I go to bed around 10:30 pm. For some, complete silence is necessary. I can’t sleep in complete silence because it becomes an opportunity for my brain to be filled with stimulating racing thoughts. I use headphones to listen to the same Netflix show every night. It interrupts the verbal chatter that goes on in my head and since I have been listening to it for very many years, it has become boring for me so it helps me sleep. I don’t watch the show, I just listen to it. I used to listen to old radio shows like Our Miss Brooks, but for some reason that stopped working so I had to try something else. If the amount of sleep I am getting becomes worrisome to me, I contact my psychiatrist.

Family and friends can support people who are developing a routine by inviting them to join you when you are doing a regular activity, such as walking. It’s important that it is an invitation rather than an appointment when people are severely unwell. For example, if someone said, “I am going for a walk tomorrow. If you’re up to it, would you like to join me?” This takes some pressure off, and it makes it easier for someone who has bipolar disorder to participate. If the person is unable to go on the day, it’s important you go on the walk anyway.

Adding structure and routine into your life when you have bipolar disorder can relieve stress, make you more consistent with taking your medication and help you build a support network. This can empower you to create a life that includes long term consistency and resilience.

Why I Take My Meds

I have experienced some frustration when discussing the role of my medication in the treatment of bipolar disorder to people who do not have the illness. Bipolar disorder is a physical illness which has physical and psychological symptoms. Bipolar disorder is not a psychological problem. Sometimes, I hear the sentiment that I am using medication as an easy crutch rather than face my life problems or sometimes people question if I even need medication. I have had people say, “Well, if it works for you that’s great,” with the emphasis on the “you.” Sometimes, people suggest yoga, exercise or meditation as a preferential solution to the issues bipolar causes in my life.

If I did not take medication I would be acutely ill frequently and I would likely require extensive psychiatric care on a daily basis. For me, the distinction between the symptoms of bipolar disorder and the regular ups and downs that everyone has is very clear. There was a time that I did not have bipolar disorder. The onset of my illness occurred in 1995. I was living in Japan and under a tremendous amount of stress which triggered my first manic episode. I had never had any symptoms of bipolar disorder before this happened.

At that time, I was experiencing psychosis. I was having delusions that made me believe I had reached enlightenment, could heal people with my mind, gain enormous wealth in a short period of time and that all my friends and family would quit their jobs and join me to live a life of endless joy and prosperity. Of course, none of that was true but bipolar disorder made it seem 100% real. I barely slept or ate any food. I am sure I was talking fast and a lot and I couldn’t sit still.

I returned to Canada and spent three months on the psych ward in Calgary and I saw multiple specialized medical doctors called psychiatrists. They were able to find the right medication to bring me down from my manic episode.

The depressive episode that followed was the worst level of anguish I have ever experienced in my life. The fatigue was so extreme that I had to use two hands to brush my teeth. I could only spend a few minutes away from my bed before being completely drained of energy and forced to return to the covers. I could intellectually recognize flavours, smells, colours and sounds but there was no human element of that perception. My body could recognize all of these but it was incapable of deriving pleasure or any meaning from any of it. My thoughts were stuck on negativity and suicidal ideation.

After I left the hospital, my psychiatrist worked on getting me the right medication and my depressive episode ran its course. I felt better and went back to work. After a few months, I started to wonder if I had bipolar disorder. After all, I had never experienced symptoms of the illness until my first episode. I thought that maybe it was just a one time thing so I decided to stop taking my medication. A few months later, I had another full blown manic episode that decimated my life. I have never stopped taking my medication since then.

There is no cure for bipolar disorder. My medication gives me a chance to live a positive life but it does not free me from my symptoms completely nor does it guarantee that I will never have an acute episode again. My last full blown, psychotic manic episode was in 2010 and I was taking my medication at the time.

I still have depressive episodes but they are milder than if I wasn’t taking medication. I occasionally have mild hypomania, a less severe form of mania, but I have a routine that prevents them from getting worse. I have learned that if I get too excited about my own ideas and I am experiencing a lot of stress I will likely have a manic episode even if I am taking medication. A high level of stress will trigger a depressive episode for me.

In addition to taking my medication, I have to make lifestyle choices to maintain a level of wellness that allows me to enjoy my life. I limit my activity level to what is within my capacity. I rarely consume alcohol. I have firm boundaries in my relationships. I try to stay active. I monitor my thoughts and I attend a peer support group. I see my psychiatrist regularly and we make adjustments to my medication if necessary. If I did not maintain this routine I am sure I would have another manic or severe depressive episode.

For me, the key to finding the right medication has been playing an active role in decisions when working with my psychiatrist. There is no imaging or blood test that a psychiatrist can use to assess your symptoms. They rely on us to give them the information they need to treat our bipolar disorder. Any information about your symptoms, side effects and current stressors in your life is helpful. Taking a notebook with this information and any questions you have to your appointments can be helpful.

For friends and family, the most supportive thing you can do is show compassion by understanding we suffer from a real illness with real physical symptoms. They are not made up in our head. When you imply otherwise it makes people blame themselves for their symptoms which is demoralizing and produces unnecessary feelings of shame. This in turn drastically reduces the chances of people regaining a positive life.

I am extremely grateful that I have medication that I respond to in a positive way. This is not the case for everyone. The side effects have been difficult and have contributed to other health problems I have and the day may come when my medication will not be effective in treating my bipolar disorder. But for right now, I am fairly content with my life and psychiatric medication has made that possible.

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